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We finally made it home on Saturday, January 01, 2005. What a
way to start the New Year. I drove home in rain most of the
way, just like when I drove to Memphis, in the rain. Janelle
and the kids flew home. We met up with family at Uncle Jeff’s
house and finally made it home Saturday night. Sunday after
church we met up with Janelle’s mom and dad for lunch then met
more of my family for dinner. Monday was Alexa’s first day of
school after Christmas break. Janelle, Daegen and I all went to
drop Alexa off at school. When we pulled up out front of school
there was hardly anyone around. It seems the school lost
electricity sometime Sunday so classes didn’t start till
afternoon. Tuesday brought ice and freezing rain. Alexa was
dismissed at 1:00. School was canceled Wednesday so her first
full day of school was Thursday. Wednesday Alexa and Daegen
went sledding in our driveway with our neighbor Jalyn and her
parents Jody and Dusty. They had so much fun sledding and
making snow angels and eating the snow. It has been a long time
since Daegen and Jalyn have been able to play with each other.
When we got home Saturday night there was a welcome home sign
on our garage door from Jalyn and her parents. They really have
helped out with the yard and house while we were in Memphis.
It took us some time but we finally unpacked our car from the
return trip. What a mess we have in our basement. We basically
have a second residence in our basement. We are gradually
making headway into getting our family back in order. It has
been fun to watch Daegen smile when he says it is great to be
home and to see him and Alexa playing with each other. Janelle
and I both know getting things back to normal will take some
time but we will prevail. We have really enjoyed our nights in
our own home and own rooms and own beds. Daegen is so excited
to rediscover his old toys and remember when he used to play
with them. He is finding toys he forgot he had. I am not sure
I can explain what it means to our family to be home and
together again.
We do enjoy cooking our meals at home and planning our days. It
is going to be quiet on our end until Thursday, January 13th
when Daegen and I fly to Memphis for his appointments on Friday,
January 14th. Daegen and I will then fly home on Friday
evening.
Thank you to all who has continued to offer kind words of
support and prayers. I can’t stress enough how much that has
helped us. Continue to check the website for updated photos.
There are Christmas photos and sledding photos posted now.
Also photos of Alexa and Amy Grant and Vince Gill. One thing I
forgot in the last update is that during Christmas Eve mass
Santa called and talked to the priest. Daegen even got to talk
to Santa on the phone. That was neat to see Daegen’s smile as
he talked on the cell phone to Santa.
I learned that when a family is leaving St. Jude, it doesn’t
necessarily mean it is good news. When I told one of the
employees of Target House that we were going home, she asked me
if it was good news. It never occurred to me that going home
could be bad news. Later I was talking to a mother of one of
the other patients and she told me of another family that was
going home but it was not good news. Nothing else could be done
for their daughter she they were being sent home. I felt really
guilty about us getting to go home. Later I was on the elevator
with a young mother and her daughter. As she was holding her
daughter I said how nice it would be for someone to carry us as
we get older. The mother agreed and then said she wished
someone could pack for her. She then said she was going home.
I told her that we too were going home the next morning. She
asked if it was good news. I told her yes. I finally realized
she was the mother of the young girl who was being sent home
because there was nothing else that could be done for her. I
told her that I had heard the news from another parent and that
my family would say a prayer for her family. She said with a
straight face and with calm resolve that her daughter would be
okay. I thought Janelle and I have been strong but to see this
young mother hold her daughter and know she was going to die
soon showed me what strength she had. I felt like a total goof
for not telling her how sorry I was to hear about her daughter
or for consoling her more. The mother even showed her happiness
for us as we got to go home and it was good news. That amazes
me about all the families at Target House. No matter what they
are going through, when a family hears about another family
getting to go home for good reasons, they are excited for them.
God Bless everyone.
Lance
www.dmanhero.com
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